Sickle cell

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The Sickle Cell Kid

Hope, research, and real-world relief for families facing sickle cell — inspired by Zyan's journey.

Every Child Deserves Quality Care

Join us in improving daily life and long-term outcomes for kids with sickle cell through education, integrative therapies, and equitable access to care.

Zyan's Story

Understanding Sickle Cell Disease

What is Sickle Cell Disease

Education

A genetic blood disorder affecting millions worldwide

Sickle cell disease is an inherited red blood cell disorder that causes cells to become crescent-shaped, leading to pain crises, organ damage, and serious complications. It primarily affects African American, Hispanic, and Mediterranean communities, with approximately 100,000 Americans living with the condition.

100K+
Americans with SCD
1 in 365
Black births affected
24/7
Support needed

Learn Our Mission

Active Campaigns

Current initiatives supporting sickle cell families

Every donation brings us closer to research, resources, and real relief for families facing sickle cell disease.

Nov 7, 2020

Equip a Family with an Education Kit

Stock a backpack with books, supplies, and a solar light so kids can keep learning at home and at school.

Raised$3,900

Goal$8,700

45%

Donate Now

Trending

Aug 17, 2020

Fund Community Acupuncture Care — $250

$250 underwrites a course of acupuncture sessions for neighbors managing pain, stress, and recovery.

Raised$4,900

Goal$7,800

63%

Donate Now

Dec 12, 2020

Advance Global Remedies Research — $1,000

$1,000 fuels evidence‑based studies that compare traditional remedies with modern care to improve outcomes.

Raised$7,600

Goal$9,800

78%

Donate Now

Mar 26, 2020

Lifeskills for Children

Your gift builds everyday skills—health, safety, and confidence—for children and their caregivers.

Raised$4,599

Goal$7,688

60%

Donate Now

Support All Campaigns

Impact : 200+ Families

Family Education Kits

Real-time pain plan templates families can bring to the ER/ICU, plus parent scripts based on lived experience.

45%

Raised : $3,900 Goal : $8,700

Trending

Impact : 50+ Sessions

Integrative Care Fund

Funding acupuncture, massage therapy, and alternative pain management for kids with sickle cell disease.

67%

Raised : $10,050 Goal : $15,000

Impact : Worldwide

Global Remedies Research

Supporting research into traditional and integrative remedies that can improve outcomes for sickle cell patients.

28%

Raised : $14,000 Goal : $50,000

Impact : 100+ Families

SSI & Financial Support Education

Helping families navigate SSI applications and secure practical supports for children with sickle cell.

53%

Raised : $5,300 Goal : $10,000

How We Help

Resources that make a difference
for sickle cell families

Pain Management

ER/ICU pain plan templates and care team scripts based on real lived experiences.

Family Education

Comprehensive education kits helping families navigate medical care and SSI benefits.

Integrative Therapies

Funding acupuncture, massage, and alternative treatments for pain relief.

Research Support

Advancing global research into traditional and integrative sickle cell remedies.

Our Mission

Mission

Improving daily life and outcomes for kids with sickle cell

We exist to improve daily life and long-term outcomes for kids with sickle cell through education, integrative therapies, and equitable access to care. Every donation brings us closer to research, resources, and real relief for families.

Key Resources We Provide:

Real-time pain plan templates families can bring to the ER/ICU
Parent scripts for care teams, based on lived experience
Education to help families secure SSI and practical supports

Read Zyan's Story

Donate Now

Your gift fuels education, integrative care, and research

Every contribution makes a real difference in the lives of children living with sickle cell disease. Whether you give once or become a monthly donor, you're providing hope and tangible support to families navigating this challenging journey.

Donations may be tax-deductible once IRS recognition is granted

Zyan: The Heart of Our Story

Inspiration

A brave kid changing how families experience sickle cell care

His Journey

Zyan is a brave kid living with a complex sickle cell history — including repeated ICU stays and intense pain episodes. His journey inspires our mission to change how families experience sickle cell care.

A Special Moment

Rapper BigXthaPlug sent Zyan a personalized video while he was in the hospital — and we're inviting more creators to lift up kids like Zyan. Your support helps us spread hope and connect families with resources that truly make a difference.

Join Our Community

Upcoming Events

Educational events and community gatherings

Join us for webinars, support groups, and educational sessions designed to empower families facing sickle cell disease.

View Calendar

15 Feb

Emergency Care Planning Workshop

Learn how to create effective pain management plans for ER visits. Parents will receive templates and scripts proven to improve communication with medical teams during crisis moments.

6:00 PM - 8:00 PM EST
Virtual Webinar (Free)

22 Mar

Integrative Therapy Open House

Explore acupuncture, massage, and holistic pain management options. Meet practitioners and learn about alternative therapies that complement traditional sickle cell treatment.

10:00 AM - 2:00 PM
Community Health Center

10 Apr

SSI Benefits & Financial Support Seminar

Navigate the SSI application process with expert guidance. Get help understanding eligibility, documentation requirements, and how to secure practical financial support for your family.

7:00 PM - 9:00 PM EST
Virtual Workshop (Free)

Community Stories

Voices from sickle cell
families we serve

Sarah M.

Parent of 8-year-old with SCD

The pain management template gave us a voice in the ER. For the first time, doctors listened and followed our plan. My daughter's last crisis was managed so much better because of the resources from The Sickle Cell Kid.

Marcus T.

Father & Advocate

The SSI education workshop was life-changing. We finally secured the benefits our son deserves, and the financial relief has allowed us to focus more on his care rather than worrying about bills constantly.

Jennifer L.

Mother & Community Member

The acupuncture sessions funded by the organization have helped reduce my son's pain episodes. It's amazing to have access to integrative care that actually works alongside his traditional treatment. Thank you!